Four generations of my family have been affected by a vision robbing retinal degenerative disease called choroideremia.
My grandfather lost his sight. My brother, cousin, and eldest son are also affected. This is an x-linked genetic disorder. My mother, aunt, and I are all carriers.
For decades, our family spent much time educating our eye care professionals on what we are contending with. There simply was not a lot of information about this disease (and others). Fortunately, we have resources around the world who are commited to finding cures.
FFB is the home I found where I could speak with other families who were experiencing the same fears. Together, we have learned that research science is making AMAZING progress. What once was considered "Buck Rogers" is now in human trials. The clock is ticking for our family members and millions of others who are impacted by retinal degenerative diseases. Guess what? We no longer have to live with that deep fear; we can live with hope. FFB works with the world's best in research science and they are the largest non-governmental financial supporter of these efforts for reseach and cures of retinal degenrative diseases. As a mother, I am on a mission to do whatever I can to help my son and my other family members.
For those of you who have supported us in the past and those who are considering it now, please pat yourselves on the back. You are helping to make history. Human trials are underway.....A CURE IS IN SIGHT.
OUR FAMILY THANKS YOU!!!!