When I first met Karine in 2000 at a retinal degeneration meeting, I thought, wow, here is a nice looking French woman! Luckily, Karine agreed to go out with me to a restaurant, where she told me she had Stargardt disease. Before this time, I had no clue she had a retinal disease and thought she wore dark sunglasses to make herself look like a movie star. In response to her news, I told her that FFB-supported scientists had just discovered the Stargardt disease gene and had already begun testing gene therapy in a Stargardt mouse model.
Jump to 2014 – Karine and I have been married for 13 years, with two girls, ages 12 and 9. I am grateful to the Foundation Fighting Blindness for helping me find Karine and for pushing hard to obtain new treatments and cures for retinal disease. Because of the Foundation Fighting Blindness, there are now gene therapy clinical trials for several retinal diseases including Stargardt disease. Besides gene therapy, the Foundation is also making great strides in supporting the development of pharmaceutical and cellular treatments for retinal disease as well.
Even if you are not able to participate in the walk that will take place on November 15th, 2014 at Hugh Taylor Birch Park, in Fort Lauderdale, we hope that you will support our team. Every little bit helps! Thank you for your support.