Our daughter Katie is a beautiful and vivacious child! In fact her full name is Katie Starr and we chose her name when she was merely a dream in our minds and hearts. It is the perfect name for our amazing daughter.
Just over four years ago we found out that Katie, who is nine years old now, has a form of hereditary retinal degenerative disease called Cone-Rod Dystrophy. It was so hard to hear that our loving and enthusiastic little girl, who loves her family, friends, cheerleading, reading and playing the piano, will eventually be completely blind.
My husband and I were devastated when doctors told us that there is currently no treatment or cure for Katie's disease. We immediately began doing our research and found out about the Foundation Fighting Blindness and their relentless pursuit of a cure. This gives us hope for our little girl. Even on our hardest days, I feel strength in knowing that there are researchers that are diligently working to discover the genes that are linked to our daughter's disease.
Sometimes I cannot help but to think about the things that Katie might one day lose forever - like the view of a sunset or the chance to look into her own child's eyes. I am doing everything in my power to ensure that she doesn't lose those precious gifts.
That is why I have dedicated myself to helping the Foundation Fighting Blindness raise awareness and funds for cutting edge research. There is no larger private funder of this research and they are the key to a cure.
The Foundation runs Vision Walks all over the country and The Katie Starr Team has been the number 1 ranked team for four years running! Over the last four years we have raised well over $120,000.00
Thank you in advance for all that you have done and will do to assist me with this mission. I am a warrior mom and I will fight this fight until a cure is found for my girl and millions just like her who either have been diagnosed or will be in the future.
In closing, I ask you to support The Foundation Fighting Blindness and bring hope to our little girl, and millions of others living with retinal degenerative diseases.
Lori and Marc Weinstock
Date: November 15, 2014
Time: Registration begins at 9 a.m.
Walk begins at 10 a.m.
Location: Hugh Taylor Birch State Park
3109 East Sunrise Blvd
Fort Lauderdale, FL