Let's make the world a brighter place for those suffering with retinal degenerative diseases!!!
Team Zoe is walking in support of our 14 year old daughter, Zoe, who was diagnosed with Retinitis Pigmentosa in early 2012. Zoe started suffering from night blindness at the age of 5 and most recently has lost most of her peripheral vision. Zoe was accepted into a clinical study at Children's Mercy Hospital in Dec 2013 but we have yet to get any results. That is why we did more research and were referred to a great team of Doctors at the University of Iowa. U of I receives funding from the FFB and they are hard at work studying Zoe's genes too. The study and research from both CMH and U of I will take time but we are praying they can find the genes within Zoe that are causing her eye sight and hearing loss. If they do, there is a possibility to do some gene therapy and/or maybe in the future some kind of surgery when a cure is found. Please keep her in your prayers!!!
Within the last couple of years the Foundation Fighting Blindness has funded many research projects that have resulted in outstanding achievements. We, along with some of the doctors we have spoken with, are confident that there is a cure in sight for over 10 million Americans affected by blinding retinal diseases in the near future. We hope that you will support Team Zoe/FFB by making a donation and/or joining us at our next VisionWalk Saturday, June 22, 2019!!! It is a lot of FUN and we would love to have as many friends and family member's join us!
Also be sure to check out the video of Zoe that was made last year! It's helps share Zoe's story!