So. 2015 didn't really go the way I thought it would. I was diagnosed with retinitis pigmentosa early in the year, and then it was confirmed via genetic testing this summer that the hearing loss I've had all my life coupled with the whole retina thing is due to a genetic disease called Usher Syndrome. It means that my eye sight will get progressively worse. My hearing could too.
Up til this year, it was just my ears I've dealt with. And I've never really given a thought to my retinas at all. Yearly eye exams because I've been a contact lens wearer for around twenty years now, and somehow it went unnoticed until now. And there's nothing fun about finding out there's anything "wrong" with you. (As if I thought I was a perfect little snow flake before)
It's been a hard year.
And I don't know how to make it all better than to try to make a difference. So, this is me telling you about Usher Syndrome and telling you about Retinitis Pigmentosa.
This is me asking you to donate to support these causes, to support research - to support progress... for me and people like me.
This is me telling you that in this upcoming election, you should pay attention to where your candidate of choice stands on the topic of medical research and funding medical research and you should seriously consider supporting a candidate that believes in science, and medicine and progress - and consider the impact your vote could have on finding cures, funding research, and maybe eliminating some of these diseases that are impacting lives.
Ill keep trying to come up with bigger and better fundraising ideas. Not only do I want to raise funds for retinal diseases, I want to raise awareness. As somone who has walked hundreds of miles to raise money to fight breast cancer, I'm willing to do the hard work here as well. Caring matters, hard work matters, and making a difference matters.
Any donation helps. I appreciate your support.
About retinal degenerative disease
Retinal degenerative diseases are groups of vision-robbing conditions that cause the progressive loss of photoreceptors, the cells in the retina that make vision possible. These conditions affect children and adults of all backgrounds across the globe.
By the year 2020, an estimated 20 million Americans will suffer from severe vision loss or be completely blind because of one of these diseases – that is just in the US alone. But we have the opportunity to change that fact. We are closer to a cure than ever before, with more clinical trials underway now than at any point in history and one actually restoring sight in 40 people.
Please support me!
By making a gift to My Campaign to End Blindness you will be joining thousands of dedicated, caring people who are working together a common goal – ending blindness.
Selfishly, I'd love them to reach that goal sooner, rather than later. Your donation - no matter its size - makes a difference. Thank you for your support.