Leader Login  

VisionNation Header

spacer VisionNation: Get Started spacer VisionNation: Find Friends spacer vision_nation spacer foundation_fighting_blindness spacer toolkit spacer leaders spacer

Sight Unseen

Sight Unseen


83 percent of goal achieved.

Fundraising Goal: $1,000.00

Total Number of Gifts: 12
Total Value of Gifts: $830.00

Recent Donors

Grandma & Grandpa Briel

Rema and Ed


Sue and Bill Arnold

Emma and Haley Johnson

Todd Turnbill

The Hakos Family

Melanie Webb

Rich & Peg

John Webb

Full Donor List Opens new window.Full Donor List

Welcome to The Johnson's support page for Emma and Haley! Thanks for visiting and please take a moment to read our message.

Our Daughters have been diagnosed with Lebers Congenital Amaurosis (LCA). The next step in the diagnosis process is to pursue genetic testing. While we have not had the money to proceed with the tests, we have been seeking other means to have the testing done. Fortunately, both children's vision has degenerated at a very slow rate since birth. This leaves promising evidence that they might receive treatment before major damage has been done.
We've all heard the phrase "sight unseen", meaning to accept something without seeing it first. We have chosen this title for our page, not only because it is a little catchy, but also because this is exactly what we often must do when it comes to coping with the daily struggle of assisting two children with LCA.
We often hear the comment that you could never tell by looking at them (Emma and Haley) that they are visually impaired or in fact, legally blind. We must learn to trust- sight unseen- that the impairment is present even though we cannot always tell just by looking at them. It wasn't until recently that any one of us, except the ophthalmologist, was even able to see the condition of their retinas and (naturally) it can slip our minds that their condition even exists. As a member of their support group we must learn to intuitively step in and assist when necessary. This isn't always easy when (aside from a few problematic symptoms) their impairment is sight unseen to the rest of us. While they are being trained to ask for help, as we all know, asking for help is no easy feat. Especially for children who desperately want to prove that they can do for themselves.
As their parents, we have had to let go of some expectations for our children and in its place we have found the unexpected joy of discovering new hopes and dreams for them. Emma and Haley are two of the most talented and inspiring children we will ever have the chance to know and love. We have learned so much about life in this process of discovering and dealing with their disability. And to think that this is only the beginning!

We invite you to get involved today!

Many of you have joined us on our journey of discovery, sadness, coping, emotional healing and survival of this disease. We value your continued support and ask that you help to support the foundation that is advocating not only for our children, but all persons with retinal diseases.
The Foundation Fighting Blindness has given us hope and is our resource for the most current news and updates. Our local FFB chapter is an amazing source of knowledge and support that we continue to draw upon as well.
We have set our fundraising goal high and realize that in this time of economic hardship not all will be able to contribute. Please DO NOT feel obligated to donate, but DO sign our guestbook. And remember, it only takes a few small efforts combined to make a big difference!

Check out Team Optimistic!

Team Optimistic has been formed on behalf of Emma and Haley. We will raise funds and participate in the 2012 VisionWalk held here in Jacksonville. Want to join us?
For more information or to donate to the team visit our webpage at

Thank you for your support,
Angie, Jeremiah, Emma, and Haley

Guest Book

Please sign our guest book. Even if you aren't able to donate, we want to hear from you!

Sign the Guest Book

Records 1 - 25 of 1,001+

Beatris Engle
Thu, Nov 23, 2017
Hello there, good web site you've in here.
p177 ( %url )

Gabriela Oneill
Thu, Nov 23, 2017
I delight in the info on your internet site. Thanks a lot.cheap nhl jerseys ( %url )

Tracy Corbin
Thu, Nov 23, 2017
Simply had to state I am ecstatic that i stumbled in your web site. Nha khoa uy tin Quan 5 nieng rang, cay ghep rang Implant, rang su gia bao nhieu nha khoa uy tin Thuan Kieu Phau thuat tham my tai tao nu cuoi nha khoa uy tin quan 10 nha khoa ( %url ) uy tin quan tan binh

Thu, Nov 23, 2017
If our main goal is to discover many customers which will buy our product, a very good marketing strategy, professional website plus a good SEO or Search Engine Optimization include the only step to your success. After all, you dont want to just happens to the web, you need to compete. Requirement gathering concerning the necessity of that application including that how this excellent affordable website design ( %url ) Creation will almost certainly fulfill the need in the business nature.

Thu, Nov 23, 2017
Wow because this is great work! Congrats and keep it up.
Also visit my web site: tinder ( %url )

Wed, Nov 22, 2017
You have the most impressive online sites.
17545 ( %url )

Bernard Bone
Wed, Nov 22, 2017
Thanks, this website is very helpful.cheap nba jerseys ( %url )

Wed, Nov 22, 2017
Thank you so much! This is definitely an fantastic internet tinder dating site free ( %url ).

Georgianna Spivakovsky
Wed, Nov 22, 2017
Surprisingly individual pleasant site. Immense information readily available on few clicks.
Look into my webpage ... tinder ( %url )

Walter Duterrau
Tue, Nov 21, 2017
Merely had to express I'm just happy that i came in your site.
my webpage :: tinder ( %url )

Mon, Nov 20, 2017
Maintain the great work and generating the group!
Check out my homepage; tinder dating site ( %url )

Iva Willilams
Mon, Nov 20, 2017
Thanks, this website is extremely valuable.
wholesale nfl jerseys ( %url )

Karolin Tompson
Sun, Nov 19, 2017
Sustain the excellent job and generating the group!
wholesale jerseys ( %url )

Maricruz Starnes
Sun, Nov 19, 2017
Very helpful looking forwards to visiting again.
Feel free to surf to my web site ... tinder dating site ( %url )

Solomon Healey
Sun, Nov 19, 2017
I enjoy the info on your web site. Regards!
Visit my homepage :: tinder ( %url )

Elke Suh
Sat, Nov 18, 2017
thank a lot for your web site it helps a lot.cheap nfl jerseys ( %url )

Mabel Falkiner
Sat, Nov 18, 2017
You can extend your mission or accomplish your aim only if you'll be able to prove the purity of your intentions and clarify your objective on the world. If you provide quality service in a fraction of a cost, usually men and women hire you. Requirement gathering in regards to the necessity of that application which include that how this site Creation is going to fulfill the need in the business nature.
my webpage: company noticed ( %url )

Micheal Brose
Sat, Nov 18, 2017
Great looking internet site. Assume you did a bunch of your own html coding.wholesale mlb jerseys ( %url )

Stephaine Darley
Sat, Nov 18, 2017
I like checking your web site. Thank you so much!wholesale nfl jerseys ( %url )

Angelo Tse
Sat, Nov 18, 2017
Many thanks, this tinder dating site ( %url ) is extremely handy.

Leopoldo Gee
Fri, Nov 17, 2017
Thanks, this site is very helpful.
Here is my homepage - Abcya Games ( %url )

Charity Fuller
Fri, Nov 17, 2017
Love the website-- extremely individual friendly and great deals to see!
My web blog ... tinder dating site ( %url )

Thu, Nov 16, 2017
Keep up the helpful work and bringing in the crowd!
My weblog - tinder dating ( %url )

Maude Redmon
Thu, Nov 16, 2017
Thanks, this site is extremely valuable.
Visit my blog post :: tinder dating ( %url )

Thu, Nov 16, 2017
With thanks! It is definitely an great web site.wholesale ncaa jerseys ( %url )

Records 1 - 25 of 1,001+

If you think this page contains objectionable content, please inform the system administrator.

basic home privacy policy visionnation_contact.jpg spacer